The International Alliance of Carer Organizations (IACO) has received funding from Novartis to conduct a four nation study of caregivers of persons with heart failure. The four nations are the United States, Canada, United Kingdom and Australia. In each of these nations, a member organization is collaborating with a heart patient advocacy organization on this important study.
Participants will be asked a series of questions about the impact of heart failure on the caregiver and the care recipient. We are particularly interested in how caring for a person with heart failure affects caregiver employment, finances, health, and social life. We will also ask questions regarding caregiver experiences with health care providers.
The information collected will be published in a report in September 2017 and posted on IACO’s website. The report will be distributed to key policymakers in the four nations so they may use the findings to introduce legislation, modify regulations and possible to provide support services to caregivers of persons with heart failure.