Senate Hearing on the BOLD Alzheimer’s Act

Senate Hearing on the BOLD Alzheimer’s Act

“Changing the Trajectory of Alzheimer’s: Reducing Risk, Detecting Early Symptoms, and Improving Data” Earlier this week, the U.S. Senate Special Committee on Aging held a hearing entitled “Changing the Trajectory of Alzheimer’s: Reducing...
IASSIDD: Family Special Interest Group sponsored events

IASSIDD: Family Special Interest Group sponsored events

The International Association of the Scientific Study of Intellectual Disabilities IASSIDD Families Special Interest Group (SIRG) is inviting attendees of the Europe IASSIDD Congress in Athens to consider attending the following Family SIRG sponsored events during the...
The Arc Releases FSRTC State Coalitions Report

The Arc Releases FSRTC State Coalitions Report

(Excerpt from the report) Family members provide the majority of support to people with disabilities across their lifespan. Family members often play the primary role in raising children and youth with disabilities, provide a broad range of supports to adult family...
New briefs on family caregiver research

New briefs on family caregiver research

FSRTC and partner The Arc have just released two new research briefs/infographics on the gaps in caregiver research related to children and older adults with disabilities and findings in the literature. The brief on caregivers of adolescents is a revised version of...
NAC Webinar on Impact of Rare Disease on Family Caregivers

NAC Webinar on Impact of Rare Disease on Family Caregivers

On February 28, National Alliance for Caregiving (NAC) released a report entitled, Rare Disease Caregiving in America. Over 1400 unpaid caregivers residing in the United States who provide care for a child or an adult with a rare disease or condition participated in...
Impact of Rare Disease on Family Caregivers

Impact of Rare Disease on Family Caregivers

Rare Disease Caregivers and Families Face Life-Altering Challenges: Support Services Rarely Used WASHINGTON, DC (PRWEB) February 28, 2018 Findings from a first-of-its-kind national snapshot of caregivers of individuals with a rare disease or condition paint a picture...
President Signs RAISE Family Caregivers Act

President Signs RAISE Family Caregivers Act

This is a policy alert from National Alliance for Caregiving. The President has signed the bipartisan Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act into law. The bill directs the Department of Health and Human Services (HHS) to develop,...