Products: Publications

 

Barrio, C., Hernandez, M., & Gaona, L. (2016). The family caregiving context among adults with disabilities: A review of the research on developmental disabilities, serious mental illness, and traumatic brain injury. Journal of Family Social Work, 19(4), 328-347.

Burke, M., Magaña, S., Garcia, M., Mello, M. (2016). The effectiveness and feasibility of an advocacy program for Latino families of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46, 2532-2538.

Burke, M.M., Arnold, C.K., & Owen, A. (2015). Sibling Advocacy: Perspectives About Advocacy From Siblings of Individuals With Intellectual and Developmental Disabilities. Inclusion, 3(3), 162–175.

Burke, M. M., Patton, K. A., & Taylor, J. L. (2016). Family support: A review of the literature of families of adolescents with disabilities. Journal of Family Social Work, 19(4), 252-285.

Croft, B., Parish, S.L., Isvan, N & Mahoney, K. (2018). Housing and employment outcomes for mental health self-direction participants. Psychiatric Services, 69(7), 819-825.

Crossman, M., Erickson Warfield, M., Kotelchuck, M., Hauser-Cram, P., & Parish, S.L. (2018). Associations between early intervention home visits, family relationships and competence for mothers of children with developmental disabilities. Maternal and Child Health Journal, 22(4), 599-607.

Grossman, B. R., & Magaña, S. (2016). Introduction to the special issue: Family Support of Persons with Disabilities Across the Life Course. Journal of Family Social Work,19(4), 237-251.

Grossman, B. R., & Webb C. E., (2016). Family support in late life: A review of the literature on aging, disability, and family caregiving. Journal of Family Social Work, 19(4), 348-395.

Heller, T., Gibbons, H., & Fisher, D. (2015). Caregiving and family support interventions: Crossing networks of aging and developmental disabilities. Intellectual and Developmental Disabilities, 53, 329-345.

Heller, T., Owen, R., Bowers, A., & Gibbons, H. M. (2017). Aging With a Physical Disability in Medicaid Managed Care. Research on aging, 39(6), 778-798.

Lopez, K., & Magaña, S. (2018). Perceptions of Family Problems and Pessimism Among Latina and Non-Latina White Mothers Raising Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1-15.

Lopez, K., Xu Y, Magaña, S., & Guzman, J. (2018). Parents reaction to autism diagnosis: A qualitative analysis comparing Latino and white parents. Journal of Rehabilitation, 84(1), 41-50.

Magaña S., Lopez, K., Machalicek, W. (2015). Parents Taking Action: A psycho-educational intervention for Latino parents of children with autism spectrum disorders.Family Process, 56(1), 59-74.

Milliken, A., Mahoney, E.K., Mahoney, K.J., Mignosa, K., Cuchetti, C., & Inoue, M. (2018). “I’m just trying to cope for both of us”: Challenges and supports of family caregivers in self-directed programs. Journal of Gerontological Social Work, 1-23.

Mirza, M., Krischer, A., Stolley, M., Magaña, S., & Martin, M. (2018). Review of parental activation interventions for parents of children with special health care needs. Child: care, health and development, 44(3), 401-426.

Reynolds, M., Gotto, G., Agosta, J., Arnold, C.K. & Faye, M.L. (2016). Supporting Families Across the Life Course. In Eds (Ed.), Critical Issues in Intellectual and Developmental Disability:Contemporary Research, Practice, and Policy (pp. pgs). Washington, DC: American Association on Intellectual and Developmental Disabilities.

Reynolds, M.C., Gotto, G.S., Arnold, C., Boehn, T.L., Magaña, S., Dinora, P., Fay, M.L., & Shaffert, R. (2015). National Goals for Supporting Families across the Life Course. Inclusion, 3(4), 260-266.

Salkas, K., Magaña, S., Marques, I., & Mirza, M. (2016). Spirituality in Latino families of children with autism spectrum disorder. Journal of Family Social Work, 19, 38-55.

Sonik, R., Parish, S.L., Akobirshoev, I., Son, E., & Rosenthal, E. (2017). Population estimates, health care characteristics, and material hardship experiences of US children with parent-reported speech-language difficulties. Language, Speech, and Hearing Services in Schools, 11, 1-8.

Vanegas, S. B., & Abdelrahim, R. (2016). Characterizing the systems of support for families of children with disabilities: A review of the literature. Journal of Family Social Work, 19(4),286-327.

Wheeler, B.Y., Lyle, A., Arnold, C., Williams, M., Imagawa, K., & Kim, M. (2015). Lifespan Perspective with Developmental Disabilities. In E.M.P. Schott & E.L. Weiss (Ed.), Transformative Social Work Practice (pp. pgs). Thousand Oaks, CA: SAGE Publications.

Yamaki, K., Wing, C., Mitchell, D., Owen, R., & Heller, T. (2018). Impact of Medicaid Managed Care on Illinois’s Acute Health Services Expenditures for Adults With Intellectual and Developmental Disabilities. Intellectual and developmental disabilities, 56(2), 133-146.

 

Family Support Research and Training Center (2015). Research Brief: Family Experiences with Long-term Supports and Services for Family Members with Intellectual and Developmental Disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2015). Research Brief: Family-Outcomes of Long-term Supports and Services for Family Members with Intellectual and Developmental Disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2016). Research Brief: Sibling Caregivers Experience Less Choice and Control. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2017). Research Brief: 60% of family caregivers provide more than 40 hours of support per week. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2018). Caregivers of Adolescents with Disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2018). Caregivers of Adults and Older Adults with Disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2018). Caregivers of Children with Disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2018). Employment outcomes and paid leave for caregivers of adults with intellectual or developmental disabilities. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2018). Employment outcomes and paid leave for caregivers of children with intellectual or developmental disabilities. Chicago, IL: University of Illinois at Chicago.

Institute for Disability and Human Development (2016). Accessible Research Summary: Sibling Disability Advocacy. Chicago IL: University of Illinois at Chicago.

Family Support Research and Training Center (2016). Developing a national agenda for family support research: A report on a national campaign to involve family support stakeholders in developing a research agenda. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2016). Recommendations to Improve Data Collection to Monitor, Track, and Evaluate State Approaches to Family Support Services. Chicago, IL: University of Illinois at Chicago.

Family Support Research and Training Center (2017). Family Support Promising Practices: Identification and Assessment of an Initial Set of Promising Practices. Chicago, IL: University of Illinois at Chicago.

National Alliance for Caregiving & AARP. (2015). Caregiving in the US 2015. Washington DC: National Alliance for Caregiving and AARP Public Policy Institute.

National Alliance for Caregiving & AARP (2015). Caregiver Profile: The typical caregiver. Washington DC: National Alliance for Caregiving and AARP Public Policy Institute.

National Alliance for Caregiving & AARP (2015). Caregivers of Older Adults: A focused look at those caring for someone age 50 plus. Washington DC: National Alliance for Caregiving and AARP Public Policy Institute.

National Alliance for Caregiving & AARP (2015). Caregivers of Younger Adults: A focused look at those caring for someone age 18 – 49. Washington DC: National Alliance for Caregiving and AARP Public Policy Institute.

National Alliance for Caregiving (2018). Rare Disease Caregiving in America. Washington DC: National Alliance for Caregiving.

The Arc (2018). Family Support Research & Training Center (FSRTC) State Coalition Brief. Washington, D.C: The Arc.

The Arc (2018). 2015-2017 Family Support Research and Training Center (FSRTC) State Coalition Report. Washington, D.C: The Arc.