Arnold, K. (2017, January). Disability service provider webinar: Engaging and supporting siblings of people with DD. NY State Sibling Resources webinar.
Arnold, K. (2017, January). Sibling webinar: Future Planning, NY State Sibling Resources webinar.
Grossman, B., & Magaña, S. (2015, September). What You Told Us to Study and What we are Learning about Siblings. Webinar through FSRTC hosted by The Arc.
Halm, A. & Arnold, K. (2017, February). SibChat on Future Planning. NY State Sibling Resources webinar.
Halm, A., Arnold, K. & Sapharas, B. (2017, February). The Sibling Leadership Network presents How to start a sibling chapter. Webinar through FSRTC hosted by The Arc.
Magaña, S. (2016, May). Parents Taking Action Webinar. Webinar through FSRTC hosted by the Association of University Centers on Disability (AUCD).
Magaña, S. (2016, July).Taking care of yourself as caregiver of a family member with a developmental disability. Webinar through FSRTC hosted by The Arc.
Magaña, S. & Morales, M. (2016, September). Racial and Ethnic Disparities Among Adults with IDD and Their Family Caregivers. Webinar through FSRTC hosted by The Arc.
Arnold, K. (2016, December). Latino Family Caregivers of People with Intellectual and Developmental Disabilities: Disparities in Family Support. Poster session, AUCD Conference, Washington, D.C.
Arnold, K. (2016, December). Sibling gathering: The sibling experience. AUCD Conference, Washington, D.C.
Arnold, K., Feinstein, C., Miller, K., & Burke, M. (2016, December). Siblings of people with disabilities: Developing leaders and ambassadors. Poster session, AUCD Conference, Washington, D.C.
Arnold, K., Martin, A. Smith, M., Goldberg, F. & Levitz, B. (2016, December). Family Support Special Interest Group. AUCD Conference, Washington, D.C.
Fox, S., Heller, T., Perkins, L., & Shirai, Y. (2016, December). Aging: Caregiver supports/ACL/technology. Invited panelist at the 2016 Association of University Centers on Disabilities annual conference, Washington, DC.
Grossman, B.R. (2017, February). Remarks on disability, community, and the Jewish life cycle. Panel presentation at Anshe Emet Synagogue, Chicago, IL.
Heller, T. (2017, February). Bridging aging and intellectual disabilities in research and practice. Invited speaker at Napier University, Edinburgh, Scotland.
Hughes, R., Robinson-Whelen, S., Bailey, E., Martel, T., & Arnold, K. & The Safety Project Consortium (2016, December). Self-advocates and researchers partnering to build a safer future. Poster session, AUCD Conference, Washington, D.C.
Magaña, S. (2017, February). Detecting and addressing disparities among Latino families of children with ASD. Colloquium presented at University of Oregon College of Education, Eugene, Oregon.
Magana, S., Arnold, K., Heller, T., Shaffert, R., Sladen, J., & Sajan, R. (2016, December). Family Support: Research, policy and practice. AUCD Conference, Washington, D.C.
Magaña, S. & Machalicek, W. (2017, February). Strategies for engaging Latino families and creating culturally appropriate interventions. Keynote address at Providence Children’s Health workshop on special needs and Latino families, Medford, Oregon.
Mahoney, E.K., Mahoney, K.J. & Cano, M. (2017, July). Matching caregiver support needs with characteristics of participant-directed programs.
Milliken, A., Mahoney, E.K., & Mahoney, K.J. (2017, July). Supportive support brokers: Family caregivers’ perceptions. Poster session at 21st IAGG World Congress of Gerontology and Geriatrics, San Francisco, CA.
Rodriguez, I., Mignosa, K., & Mahoney, E.K. (2017, April). Common and unique challenges among family caregivers of individuals with diverse disabilities. Poster session, Alpha Chi Chapter Sigma Theta Tau International Annual Spring Research Program, Chestnut Hill, MA.
Pre-service training on family support have been provided to students at the University of Illinois at Chicago (UIC).Several members of the FSRTC team regularly teach academic courses related to family support and they have infused their courses with information gained from research findings and dissemination materials. Courses taught include:
- DHD526 Family Perspectives on Disability
- DHD528 Race, Culture, and Health Disparities
- DHD 581. Disability Policy I: Foundations of Disability Policy
- DHD 582. Disability Policy II: Contemporary Issues in Disability Policy.
- DHD 505. Leadership Education in Neurodevelopmental and Related Disabilities I
- DHD 506. Leadership Education in Neurodevelopmental and Related Disabilities II
- DHD 403. Disability in Latino Communities
- DHD 202. Disability, Health, and Society
- DHD 101. Disability in U.S. Society
The first six are courses for graduate students in UIC’s Department of Disability and Human Development, and the last two are open to undergraduates.
Additionally, the RRTC has employed 9 graduate students at UIC and additional students at other project sites to gain experience and skills in family support research and policy. Current UIC graduate students working on the FSRTC are:
- Randa Abdelrahim, MS, PhD student in Disability Studies
- Katie Arnold, MS, PhD student in Disability Studies
- Caitlin Crabb, MPH, PhD student in Disability Studies
- Jacqueline Guzman, BS/BA, Master Student in Kinesiology
- Sumithra Murthy, MPH, PhD student in Disability Studies
- Judith Rocha, MSW, PhD Student in Jane Adams College of Social Work
- Kristen Salkas, MS, PhD Candidate in Disability Studies
- Mariana Torres, MA, PhD Student in Disability Studies
- Yue Xu, MSW, PhD student in Disability Studies
Some of our students’ profiles can be found here: http://t4.ahs.uic.edu/dhd/academics/students/
Our graduate students work on specific projects such as Parents Taking Action, development of the strategic research plan, identifying promising practices in family supports and family support in managed care. Others have been working on media promotion, dissemination, and knowledge translation of research findings. Students have also been invited to participate in, contribute to, and gain information from FSRTC meetings and events, and consult with FSRTC faculty members on their disability and policy related research. Participating in different aspects of family support research, students are gaining skills and experiences to better inform their own research and practices on family support.