Wednesday, September 14, 2016 from 2:00 pm – 3:00 pm Eastern Time
The majority of children and adults with intellectual and developmental disabilities (I/DD) live with their families. This is especially true for people with I/DD from Latino and other minority households. The primary caregivers in these households, who are usually mothers, face significant challenges with their own emotional and physical health. Furthermore, research suggests that lifelong caregiving exacerbates already existing health disparities that Latina women face. Effective practical interventions that promote healthy lifestyle behaviors and well-being among caregiving mothers are needed.
In this webinar, Sandy Magaña, Miguel Morales, and Judith Rocha will present information about an evidenced-based intervention, “By Caring for Myself, I Can Care Better for My Family.” This intervention engages community health workers who are also family caregivers of persons with I/DD to deliver the curriculum. They will discuss cultural aspects and other components of the intervention, how to set up a similar project in your area, and how to adapt it to other cultural groups.
Register for this session:
This event is sponsored by the Family Support Research and Training Center at the University of Illinois at Chicago.
About the Family Support Research and Training Center (FSRTC): FSRTC aims to learn more about families’ needs in supporting members with all disabilities across the lifespan, as well as promising family support practices around the country.
About the Speakers:
Sandy Magaña, PhD, MSW, is a professor in Disability and Human Development at the University of Illinois at Chicago. She has been a leader in investigating racial and ethnic disparities among children with autism and developmental disabilities and among their family caregivers. Building on this research, Magaña has developed culturally relevant interventions to address these disparities, bringing the Promotora de Salud (community health worker) model to the disability world. She is in the process of leading a large two-site randomized trial of an intervention that seeks to empower Latino parents of children with autism spectrum disorder (ASD). She is also director of the newly established Family Support Research and Training Center (FSRTC).
Miguel A. Morales is the Assistant Director of Research and Training at Family Support Research and Training Center at the Department of Disability of Human Development, University of Illinois at Chicago. He obtained a Master of Public Health at the University of Illinois at Chicago. He was previously the Northwest Side Community Programs Coordinator for the Consortium to Lower Obesity in Chicago Children (CLOCC) and Program Manager at Community Organizing for Obesity Prevention in Humboldt Park (CO-OP: HP). His previous research efforts have included community based participatory research and health behaviors related to nutrition and physical activity.
Judith S. Rocha is a licensed clinical social worker (LCSW) and a 4th year PhD Student at the University of Illinois at Chicago, Jane Addams College of Social Work. As a Latina born in Chicago and raised in the Little Village neighborhood (a Chicago low-income ethnic enclave), by a hard-working single mother and loving older siblings, all Mexican-born; Judith has always been interested in helping Latina/o families negotiate the complexities of their transnational lives successfully. Research interests include Latino-relevant social issues with a focus on family caregiving of older Latinos with Alzheimer’s disease or related dementia (ADRD). Her work in the past has included various social services and support for Latino children and families in the near south and south side of Chicago where resources are often times scarce and opportunities for a higher quality of life can be inaccessible. Based on the extensive work carried out in and for the Latino community as well as personal experiences, she has first-hand knowledge of the effect local, national and international policy have on areas of labor, education and health in immigrant communities. Through her dissertation, she plans to develop and pilot-test a culturally responsive health education intervention program for Latinas that are caring for a family member/loved one with ADRD as an attempt to help inform future research addressing health disparities that exist within this population.