The following article excerpt is reprinted from the National Alliance for Caregivers website
NAC, in partnership with the Leaders Engaged on Alzheimer’s Disease (LEAD) Coalition, is proud to release Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development, which explores the vital roles that family caregivers can play in shaping biomedical research and development, regulatory decision-making, and healthcare delivery.
This first-of-its-kind report addresses how to incorporate the critical knowledge of caregivers in developing pharmaceutical products, biologic therapies, diagnostics, and medical devices. The report provides recommendations for leveraging caregivers’ enormous reservoir of information and observations about the conditions their care recipients experience and associated health outcomes. The report was developed with clear recognition that people living with various health conditions along with their friends and family members are essential partners in the delivery of health care.
Read more information about the report and download the full report here: Paving the Path for Family Centered Design.