FSRTC State of the Science Conference 2018
The State of the Science (SOS) Conference for Family Support Research was held on June 11, 2018 in Washington D.C. The conference was coordinated by the Family Support Research and Training Center (Department of Disability and Human Development, University of Illinois at Chicago) which is funded through the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). The SOS Conference was the culmination of over three years of research on family caregivers related to services and supports, interventions, best practices and identification of gaps in the research and recommendations to advance research in the field.
Below is the conference agenda and links to the presentations. In the future, we will augment each section with either video or audio from the conference.
Conference Agenda
| Times | Presentation Title | Presenter |
| 9:00–9:15 | Opening/ Welcome | Sandy Magaña, PhD, MSW |
| 9:15–10:15 | Keynote and Q&A | Lance Robertson, Administrator and Assistant Secretary for Aging, Administration for Community Living |
| 10:20–11:20 | Panel 1: Family Support across the Life Course and Diverse Populations | Moderator: Nelsinia Ramos, Wisconsin FACETS and FSRTC Advisory Committee Member |
| Parents Taking Action: A psychoeducational program for Latino parents of children with ASD |
Sandy Magaña, PhD, MSW, University of Texas at Austin Miguel Morales, MPH, University of Illinois at Chicago |
|
| Rare Disease Caregiving in America | C. Grace Whiting, JD, President and CEO, National Alliance for Caregiving | |
| Latino Family Caregiving and Schizophrenia |
Mercedes Hernández, PhD, LCSW, University of Texas at Austin Concepción Barrio, PhD, LCSW, University of Southern California |
|
| 1:30–2:09 | Panel 2: Managed Care and Family Support | Moderator: Mary Lee Fay, National Association of State Directors of Developmental Disabilities Services |
| Managed Care and Family Support | Tamar Heller, PhD, University of Illinois at Chicago | |
| AARP Learning Collaborative on Family Caregivers and Managed LTSS | Wendy Fox-Grange, AARP | |
| 2:10–3:10 | Moderator: Jenny Turner, University of Missouri, Kansas City | Panel 3: Promising Practices in Family Support |
| Identifying Promising Practices in Family Support Services |
Joe Caldwell, PhD, National Council on Aging Katie Arnold, MS, University of Illinois at Chicago |
|
| Development of an Online Course for ADRCs on Family Support | Susan O’Nell, University of Minnesota | |
| Family Support State Coalition Gatherings | Jenny Sladen, The Arc | |
| 3:30–4:25 | Panel 4: Home and Community Based Services and Family Support | Moderator: Lynn Friss Feinberg, MSW, AARP Public Policy Institute |
| Predictors of Caregiver Well-Being in a Consumer Directed Medicaid Waiver Program | Marji Erickson Warfield, PhD, and Hebatallah A. Naim Ali, MD, MS/IHPM, PhD Student, Brandeis University | |
| State Medicaid Provisions that Caregivers Find Supportive: An Analysis of State Plan and Waiver Provisions in Self-Directed Programs |
Ellen Mahoney, RN, PhD, and Kevin Mahoney, PhD, Boston College |
|
| 4:30–4:45 | Closing remarks | Andrew J. Imparato, JD, Executive Director, AUCD |